Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope.
The FSHD Society is a research-focused patient organization that has catalyzed the global research community. We have funded every major advancement that has propelled us into the era of treatment discovery and development to end the pain, disability and suffering caused by FSH Muscular Dystrophy (FSHD). The FSHD Society has transformed the landscape for FSHD research, and is the world’s leading patient advocacy organization committed to making sure that no one faces this disease alone.
Also, attached is an essay written by Landon, and a shirt we made in honor of him and his family.
Thank you for your support! - Kappa Sig TAU