3D's & Jeremy
The money raised will impact families like mine living with FSH Muscular Dystrophy. After my mother discovered she had FSHD, it was confirmed that 3 of her 5 children had inherited it as well as my son Jeremy. With support the FSH Society has made great strides in understanding FSH and are moving forward with important clinical research.
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope.
Thank you for your support! - 3D's (Deb, Dave, Dan & Jeremy