Len Gilman’s 90th birthday is in April, and to honor him and that milestone occasion he asks that you support his favorite charitable organization.
Len writes, “For my nonagenarian birthday I’m asking for donations to the facio-scapulo-humeral (FSH) Society. I’ve chosen the FSH Society because its mission is so important to me and hundreds of thousands world-wide.
In the early 1980’s my daughter Cindy (an FSH sufferer) introduced me to Daniel Perez who had just founded the FSH Society. Dan is a force of nature and before that meeting ended I had taken on the role and responsibility as the Society’s first National Fundraising Chair."
Time passes. Cindy is gone and now Julie's FSH has progressed.
The money I'm raising will support programs and help fund research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. Around 20 percent will need a wheelchair by age 50.
The FSH Society is a research-focused patient organization that has catalyzed the global research community. We have funded every major advancement that has propelled us into the era of treatment discovery and development to end the pain, disability and suffering caused by FSH Muscular Dystrophy (FSHD). The FSH Society has transformed the landscape for FSHD research, and is the world’s leading patient advocacy organization committed to making sure that no one faces this disease alone.
Please visit the FSH Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!
Those who have been unfortunate to suffer from the FSHD gene are counting on people just like you and me to help. Can I count on you?
Your donation is an approved tax deductible charitable gift. Be assured I join with tens of thousands of FSH supporters in thanking you for your gift.
Thank you for your support! - Len Gilman