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Jenna Ness

Jenna Ness

The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cureā€”but there is hope. I'm committed to making sure that no one faces this disease alone.

Please visit the FSHD Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!

Thank you for your support! - Jenna


raised of $100 goal

Recent Donations

1. MNMaree Ness
2. KNKiira Ness
3. NANancy Atwood
Thanks Jenna for being part of something that will bless others.
4. ?Anonymous
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Team Jeff