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Betsy Bland

Betsy Bland

The money I'm raising by participating in this Walk & Roll is supporting my best friend, Sue Aumiller, whose husband and son were diagnosed with this rare disease less than two years ago. It supports programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope. I'm committed to making sure that no one faces this disease alone.

Please visit the FSH Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!

Thank you for your support! - Betsy


raised of $250 goal

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