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Welcome to My Page

Heather Guthrie

Heather Guthrie

The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cureā€”but there is hope. I'm committed to making sure that no one faces this disease alone.

Please visit the FSHD Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!

Thank you for your support! - Heather


raised of $400 goal

Recent Donations

1. NMNancy And Ed Metzger
2. KGKathy Guthrie
3. BjBrandon Johnson
Proud of you! Love you

Team FSHD Destroyers