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Sisters Trio

Sisters Trio

The money we're raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families (including mine) living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. My family has a gene that affects 50 percent due to a parent being effected So in my family my mother has it and so does my brother and me. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope.

Thank you for your support! - Sisters Trio

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$3,311.79
raised of $2,000 goal
 

11 Participants

recruited
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Recent Donations

$51.79
1. Abbie
Match for gift from Mark and Victoria Mullally
$70.00
2. Mary & Anton Mauch
Thank you so much Luke!
$130.00
3. Luke Kosten
$100.00
4. Julia Gianosa
$25.00
5. Tony Mauch
$20.00
6. Valerie Snyder