The money we're raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families (including mine) living with FSH Muscular Dystrophy (FSHD).
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. My family has a gene that affects 50 percent due to a parent being effected So in my family my mother has it and so does my brother and me. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope.
Thank you for your support! - Sisters Trio