Brave, Bruised, Not Broken
Our team name is inspired by the chorus of the song This is Me by Keala Settle “I am brave, I am bruised, I am who I’m meant to be. This is me.”
It’s an empowering song and means a lot to me as I’ve navigated my own identity with having FSHD. I went from a mindset of hiding my disease to now where I own my identity of having FSHD from a place of power. Yes I have this disease that gives me an uncertain future, that makes me bruised. But I’m going to face this disease head on by pushing for a cure, by donating money and volunteering for clinical trials. That makes me brave.
This disease will not break me nor does having it make me broken. If anything, my diagnosis has made me stronger and pushed me further into who I’m supposed to be.
So in the spirit of that, if you have pieces of you that are bruised, but you still face them with bravery all while acknowledging this doesn’t make you broken, you’ve found the right team.
We are brave, we are bruised and we are who we’re meant to be. This is us!
The money we're raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact me and others living with FSH Muscular Dystrophy (FSHD).
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope.
Thank you for your support! - Brave, Bruised, Not Broken