The money I am raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD). This includes ME and my mother, brother and cousin.
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. Our family is so lucky we have the strain that affects 50% of a family if a parent has it. It affects everyone differently (me and my lucky lower body) but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope. I'm committed to making sure that no one faces this disease alone.
Please visit the FSH Society website (fshsociety.org) to learn more about FSHD, ways to get involved, (Join my team) and everything that is happening!
Thank you for your support! - Mary (Sisters Trio)