Mark your calendars!! For the First Ever Connecticut Walk and Roll for a Cure benefiting FSH Society for Muscular Dystrophy. This event is very important to me and my family as some of you may know my husband is in effected by this debilitating disease. Your support in this event would be greatly appreciated. All are welcomed and your furbabies! I have enclosed a link to access the page: https://teamfshd.fshsociety.org/CTWalkandRoll
The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope. I'm committed to making sure that no one faces this disease alone.
Please visit the FSHD Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!
Thank you for your support! - diane