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The money we're raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope.

Thank you for your support! - Dani


raised of $500 goal

2 Participants

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Recent Donations

1. HCHenry Carrey
To support Daniel Krasa
2. KAKarla Allan
I am pleased to be able to support research into a cure for FSHD, and I thank Dani Krasa for alerting me to this opportunity.
3. JTJane Tenenbaum
Go, Dani!
4. AWAlan Weiss
5. SWSharon Weidenaar
6. TITheres Imhof-Klimm
We wish you all the best for research, and your life🤗☀️