Thank you for visiting our page!!
Please sign up and be apart of this AMAZING walk! We are so grateful for people like you and all the support given these last few years. Dennis was diagnosed with this horrible disease after years of pain and increased muscle weakness. Please consider being the reason HOPE exists! Let’s make our team bigger than last year!!! We love you all!
This Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope.
Thank you for your support! - LUNNATICS