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Cecelia Roesch

Cecelia Roesch

The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cureā€”but there is hope. I'm committed to making sure that no one faces this disease alone.

Please visit the FSHD Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!

Thank you for your support! - Cecelia

Comments

$25
raised of $25 goal
 

Recent Donations

$25.00
1. Cecelia Roesch
Katie, I am so proud of you and all you have done working towards a cure for FSHD. You are an amazing woman and I am excited to be a part of your healing journey and the others affected with this.
Member of

Team Inner Connections Yoga - ICY

$975
$500