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Cecelia Roesch

Cecelia Roesch

The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cureā€”but there is hope. I'm committed to making sure that no one faces this disease alone.

Please visit the FSHD Society website ( to learn more about FSHD, ways to get involved, and everything that is happening!

Thank you for your support! - Cecelia


raised of $25 goal

Recent Donations

1. CRCecelia Roesch
Katie, I am so proud of you and all you have done working towards a cure for FSHD. You are an amazing woman and I am excited to be a part of your healing journey and the others affected with this.
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Team Inner Connections Yoga - ICY