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Paula Lucey

Paula Lucey

My daughter, Sarah, was diagnosed with FSHD four years ago at the age of 35.

FSHD (Facioscapulohumeral Muscular Dystrophy) is a genetic disorder that leads to the weakening of skeletal muscles, often presenting first in the face (facio), shoulders (scapula) and upper arms (humeral). 1 in 8,333 individuals, or 870,000 people worldwide, are affected by this disease. Over 70 percent experience debilitating pain and fatigue and around 20 percent will need a wheelchair by age 50. Unfortunately, there is no effective treatment or cure. The goal of Colorado’s 4th annual Walk & Roll to Cure FSHD is to raise money toward funding research to find a treatment and cure for FSHD and support patients and their families as needed. By joining forces in events like these we can accomplish great things.

When Sarah was just a child her paternal grandfather lovingly tagged her with the nickname “small medium large” to match her SML initials. In the spirit of this beautiful memory, Team SML will gratefully accept SMALL, MEDIUM and LARGE donations to this important cause - it all adds up.

Team SML’s goal is to raise $2,500.00 to help find a treatment and cure as soon as possible for Sarah and all the others with FSHD.

We would love to have you on Team SML! Let's do this together!

Thank you for your support,

Paula Lucey (Sarah’s Mom)

P.S. Please visit the FSH Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!


raised of $2,500 goal

Recent Donations

1. Rosemary Strong
This contribution is for Paula Lucey's daughter Sarah.
2. Kathy Holly
3. Rosemary Brower
4. Kathleen McInnish
5. Debra A Flores
6. Paula Lucey

Team SML