Dear friends and family,
As you know, my daughter, Carden Wyckoff, has FSHD Muscular Dystrophy. The money we are raising, by participating in this Walk & Roll, will go directly towards supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD), like Carden.
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—BUT there is HOPE! I'm committed to making sure that no one faces this disease alone.
THREE WAYS TO HELP:
1. DONATE any amount that you can.
2. DONATE and JOIN OUR TEAM
If you can attend the Walk and Roll on Sun. Sept. 29
Chattahoochee Nature Center, Roswell, GA.
(Registration begins at 10am and the walk at 11am)
A BBQ lunch will be served.
3. VISIT the FSH Society website (fshsociety.org) to learn more about FSHD and ways to get involved.
(All deductions are tax deductible)
Thank you from the bottom of my heart for your support!