FSHD Society


TEAM FSHD is the grassroots community fundraising program at the FSHD Society. As a member of TEAM FSHD you can turn your passion and  interest into fundraising events aimed at finding a cure for FSH Muscular Dystrophy (FSHD). TEAM FSHD members are passionate about transforming their interests into opportunities to raise funds and awareness for FSHD patient support programs and research.

Whether you join an existing event, like our signature Walk & Roll to Cure FSHD, or start your own, you'll be joining a nationwide community of change-makers determined to make a difference for those impacted by FSHD. When you join our community, you'll receive:
  • a personalized fundraising page to share with family and friends
  • an online fundraising headquarters to track all your progress
  • helpful tips and resources to help you along the way

Interested in hosting a signature Walk & Roll to Cure FSHD in your area? Please contact us: FSHCommunity@fshdsociety.org.

FSHD affects nearly 1 million men, women and children worldwide, leaving them with the inability to walk, raise their arms, or simply smile. The FSHD Society is the largest network of patients, families, clinicians, researchers and friends - all advocating for FSHD.  YOU are the driving force that enables the FSHD Society to support & empower families and to fund groundbreaking research to find treatments and a cure!  

Learn more about the FSHD Society and who we're fighting for on our Website 
Past Events
Personal Fundraisers
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